On Thursday, we went to London.
Simple sentence to type, much larger when you consider the implications of going to a capital city in a wheelchair, severely ill. All the more so when only two weeks ago, I could never have considered it.
The fact I managed a 12 hour day, from door to door, is incredible. I’m paying for it now of course, but even that is less than I anticipated. I think a combination of improvement in my health, and the way we had our day set up, were factors with this. We walked – wheeled – through Hyde Park for well over an hour, and had a lovely time looking at everything, as well as catching Pokémon (yes, this was a Poké trip), chatting and putting the world to rights. Little Crafter was shocked at the behaviour of another child on the train and spent a good ten minutes on a roll about it.
After Hyde Park – and the disaster that was christened The World’s Worst Coffee EVER – we headed by bus to the Natural History Museum. I have to admit as much as I was telling Little Crafter not to worry about it, i had been really stressed about the public transport part of our trip, but the bus drivers were great, and even the passengers accepted needing to move for my chair much more readily than happens at home. It was a pleasant surprise. When we got to NHM, we found a queue almost the length of the museum. Sure that couldn’t be the entrance queue, I went to find a worker, but before I could ask, was told we could go straight in. Sometimes, I said to Little Crafter, it’s worth having a disabled mum.
We had an incredible time at the museum. I could have stayed forever in the human evolution area, being an anthropology and archaeology geek, but everywhere we went was incredible. We’ve been before but it is one of those amazing places that has an endless supply of knowledge.
The newly moved blue whale skeleton was one of my motivations for visiting this time. Little Crafter stood, mouth agape, just staring at it, and the joy that gave me was almost as much as the whale itself.
We sat in the café snacking and chatting, Little Crafter on Pokémon, me crocheting, for a really perfect period in time. If I could have bottled up that moment, I would have kept a bit for my darkest days.
Possibly something I’ll never forget was in the dinosaur area, where we were given the opportunity to hold a bone from a real dinosaur. Holding the weight of something from 170 MILLION years ago was awe inspiring, and made my love of history almost bubble over with excitement.
Later on we met up briefly with a really dear friend, a yarnie friend, and their child; we had a lovely time, them knitting, me crocheting, kids talking Pokémon together. It just needed to be three hours longer!!
Heading back to the train station I found the niggles of migraine that had been in the background earlier coming up in strength. I took a triptan and kept my smile on place because I needed to give Little Crafter a day not ruled by my health. We got on a train with ease and almost perfect timing, the same with the bus after returning to our home station.
By the time I got home I was ready to collapse but my gosh it was worth it. And I am still in awe of both myself, and the injection, allowing me to do this.
I must confess that when the doctor in London first suggested that migraine treatment was the way to go, I was slightly skeptical. Now I’m fully embracing and understanding of just how awful migraine can be. Even knowing I suffered from them, I underestimated what they were doing to my body.
I don’t know how long I will benefit from this injection, or from the ones I’m hopeful will follow on both sides, but even if life will now be planned around three month windows, I can handle that; it is by far an improvement on having no life to plan with.